Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder characterized by joint hypermobility, skin hyper extensibility and abnormal wound healing.
The Swedish Ehlers-Danlos Syndrome National Association (EDS Riksförbund Sverige). by Swedish Ehlers-Danlos Syndrome National Association published about 1 month ago
This same video is available in Swedish here: www.youtube.com/watch?v=AaXADkhSFU4
Britta Berglund, the founder of the Swedish EDS association, gives a brief history in this video....
Testimony of Geneviève by Geneviève published about 1 month ago
I am 52 years old. At the age of 45, I learned that my daughter and I have Ehlers-Danlos syndrome.
At this point, I had to use a manual wheelchair for my travels. Despite signs related to the EDS since my childhood (hyperlaxity, fatigue, pain, weakness, digestive problems.. ), the ignorance of the illness caused me a great delay in diagnosis and to endure an inappropriate sequence of surg...