Discutez ensemble avec d'autres malades, leurs familles touchées par l’Hémiplégie Alternante ou dites-nous juste ce que vous avez sur le cœur.
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sciccodicola | il y a 10 jours | Rédigé à l'origine en anglais Vivint Gives Back contest. Win Grant Money for AHCF!!
Hello AHCF Families and Friends,
We need your help to vote every day in the Vivint contest to win $250,000.00 to further research into AHC, develop treatments and trial medications, teach the public and professionals about AHC and ultimately find a cure! You have to be on Facebook to participate.
IT'S EASY and just takes 5 seconds of your day!!
1) Go to www.vivint.com/givesbackproject/charity/57
2) login to Facebook
3) Vote for Alternating Hemiplegia of Childhood Foundation, ONE VOTE EVERYDAY UNTIL AUGUST 27TH. Bookmark this page.
We will need thousands and thousands of votes to win and are up against some tough competition so please SEND A MESSAGE to each and every Friend you have on Facebook, ask them to vote and post it to their wall and better yet, help by messaging all of their friends too!
We've been victorious before, we can do it again! It takes millions of dollars to find a cure and the AHC kids are counting on us :)
Top prize is $250,000.00. Top Charity in each region wins $100,00.00. We are in the Eastern region.
I want to know if you have had the same experience as we have. Our daughter Sunna has had 2 periods of episodes that last for 12 days. Once when she was 2 year old and then again when she was 5. Please tell me if you have had the same experience and how far apart were the periods?
Siggi | il y a environ 1 mois | Rédigé à l'origine en anglais AHC family meeting in Raleigh, North-Carolina
AHCF (US organization for AHC) is hosting a family meeting in Raleigh, North Carolina in July 2011. More information is to be found here: ahckids.org/index.php?option=com_content&a...
Thanks Siggi for posting this :) If anyone has questions about the meeting, they can email our VP Lynn Egan [email protected], my wife Renee Wuchich
(coordinator locally in Raleigh)
[email protected] or me [email protected] Hope to see many families there!
President, AHC Foundation
545 Irina DR Rolesville, NC 27571
¿Hay alguien de esta comunidad que esté utilizando el Sodyum Oxibate?
¿Tienen información sobre el ensayo de este medicamento, que estaba realizando el equipo de la dra. Swoboda?