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New AKU StudyVoir: Traductions (FR) Langue originale
From Nick, Chairman of the AKU Society:
Dear AKU friends,
We've just finished a study to calculate the average cost of an AKU patient to the National Health Service. The study was carried out pro bono by Michael Craig, one of our volunteers who is a senior analyst at KPMG. As you'll see from the attached presentation, it's an excellent study that provides us with useful data to argue in favour of better coordinated care for AKU patients and access to specialised treatments.
Our conclusion is that the overall costs of AKU patients are tiny when compared to the total budget of the NHS. However, costs per individual AKU patient can be high (up to £100,000 per patient per year in some cases) and could be reduced with consistent access to proper treatment at the right time, which would lead to significant improvements in their health and wellbeing. I expect that similar conclusions would be found elsewhere in the rare disease sector if similar studies were done for other individual rare diseases.
If you have any feedback/comments, please don't hesitate to email them over. Please do keep in mind that the extent of the study was limited by access to resources and information.
All the very best,
Find the study online here: