Macroglobulinemia de Waldenstrom comunidad

La macroglobulinemia de Waldenstrom (MW) es un cáncer de células blancas (linfocitos).

Mi vida con la enfermedad de Waldenström

Escrito por stevechristie, published 3 meses.

Mi tratamiento

Padezco la enfermedad de Waldenström desde 1996. Recibí 6 dosis de quimioterapia en 1996. Otras 6 dosis en 1999, y otras 8 el año pasado cuando regresó la enfermedad. Gracias a esto la enfermedad ha sido frenada (pero vuelve lentamente).

Mi sistema inmunitario ha fallado y he sufrido 2 infartos (posiblemente a consecuencia de todo el tratamiento contra el cáncer). Tengo 58 años y me aferro a la vida, aunque mis actividades están algo restringidas aún intento pasarlo bien.

Escrito por stevechristie, published 3 meses.

2 commentarios para «Mi vida con la enfermedad de Waldenström»

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  • berruetadecora

    Hola
    Soy nuevo con esta enfermedad. Hace casi ya un año que me diagnosticaron MW. Veo que hay pacientes desde hace varios años. Me preocupa mucho saber cuanto tiempo puedo vivir. Tengo actualmente 47 años. Si hay alguien que le hayan diagnosticado MW con una edad parecida a la mía y me puede informar de como se encuantra y cuanto tiempo a pasado hasta recaer nuevamente, se lo agradecería. En primavera de esta año 2011, me hiciero 6 ciclos de Rituximab, dexametaxona y ciclofosfamida. Ahora me encuantro relativamente bien.

    Hello
    I am new to this disease. Almost been a year ago I was diagnosed MW. I see that there are patients for several years. I am very concerned to know how long I can live. Now I have 47 years. If anyone MW have been diagnosed with a similar age to mine and I can report as well.The and how much time has passed to fall again, I appreciate it. In the spring of 2011, you make me 6 cycles of rituximab, dexamethasone and cyclophosphamide. Now I well.The relatively well.

  • pmanning

    @berruetadecora
    Thank you for your response to Steve Christie's story. I am 56 and was diagnosed just over a year ago. I have had R-CHOP chemotherapy (October 2010 to February 2011) as well as high-dose LEAM chemotherapy and an autologous stem cell graft (August 2011).
    The news of such a diagnosis is bound to make each of us wonder how long we will live. This is probably an impossible question to answer, but I will just say that the general view is that treatments and survival times for this disease have improved considerably over the years and that there are very exciting developments in treatment taking place at the moment. Some people have an easier journey with this disease than others, but it is important to seek the best possible advice and treatment and I am glad to learn that you are well now. It is also of course important to eat well and to keep active.
    Do keep looking at this website for news and to keep in contact with others affected by Waldenstrom's. If you post messages on the forum on this site, they can be translated into English, French, German and Italian, and you can request that any messages posted in these languages can be translated into Spanish.
    I do not believe there is a patient-support organisation in Spain at the moment, but the IWMF (based in the USA) is an excellent source of support and information and worth joining:
    www.iwmf.com/
    Do stay in contact.
    Very best wishes,
    Phil Manning (English-language moderator)

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