Privacy Policy

Escrito por The RDC Team, published más de 2 años.

Rare Disease Communities respects and protects the privacy of people who use the Rare Disease Communities website. Individual available information about you is not disclosed to any third party without first receiving your permission, as explained in this Privacy Policy.

The following is a statement of our information gathering and dissemination practices for this website:

What information do we collect?

Rare Disease Communities does not collect any unique information about you (such as your name, e-mail address etc), except when you specifically and knowingly provide such information (for example, forum registration or Newsletter subscription). By providing personal details you are consenting to its use. Such personal information will be used to identify you as a unique user, and the information will not be shared with any other entity or organisation, unless you have specifically requested us to do so.


Your Internet browser has a feature called "cookies" which store small amounts of data on your computer about your visit to our site. Our site does not use cookies to keep track of your movements through the Rare Disease Communities website, with the exception of the private administration area.

Cookies are used in the private administration area area of the website. Access to this area is limited to authorised content contributors. Cookies in the administration area are not used to collect personal information or to track movements. They do allow a Webmaster or section coordinator to monitor the status of content contributions on the basis of individual contributors’ identities. administration cookies also serve functional purposes to enable a contributor to add content to the site, enhance the usability of the administration area for the contributor, and allow communication among contributors.

Traffic Data

Each time a visitor comes to the Rare Disease Communities website, we collect some basic technical information. We use software to keep track of traffic to our site and acquire such information as the location from which the traffic originates and which particular pages within the site are being viewed and for how long. We may know for instance, that we had 1,000 hits and 800 individual visitors to our website today, but we do not know their names, addresses, or other personal information.

With whom does Rare Disease Communities share information?

Rare Disease Communities will not share personally identifiable information with any third party without your express consent.

Is my personal information secure?

This site has security measures in place to protect the loss, misuse and alteration of the information under our control. Security is the responsibility of our hosting company. Rare Disease Communities has a contract with the company to ensure that personal data is protected by passwords, firewalls and other security.

What about the sites that you link to?

Rare Disease Communities is not responsible for the privacy practices or the content of web sites external to the domain "".

Who can I ask if I have additional questions?

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you may contact: .

Escrito por The RDC Team, published más de 2 años.

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