Waldenstrom macroglobulinemia community

Meet, discuss & support other patients or families living with Waldenstrom macroglobulinemia. Participate in group discussions. Contribute to topics, or just share what's on your mind

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Waldenstrom macroglobulinemia community news

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    One on One: Peter DeNardis Pitt staffer’s efforts recognized with Jefferson Award
    News, published 3 months ago

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    And DeNardis really knows of what he speaks: In 2003 at age 43, with a wife of 20 years and kids aged 16, 14 and 7, he was diagnosed with WM and told that the disease likely would kill him in a few years.

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    WM Clinical Trials
    News, published 4 months ago

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    via Clinicaltrials.gov

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    EURORDIS
    News, published 4 months ago

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    EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.

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    European Cancer Patient Coalition
    News, published 4 months ago

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    The European Cancer Patient Coalition is the voice of the European cancer patient community, uniquely representing the interests of all cancer patient groups from the major to the rarer cancers.

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    European Organisation for Research and Treatment of Cancer
    News, published 4 months ago

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    EORTC is an international non-profit organization with a scientific goal created in 1962 by European cancer specialists, one of whom was the Belgian Professor Henri Tagnon.  

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    European Medicines Agency
    News, published 4 months ago

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    The European Medicines Agency is a decentralised agency of the European Union, located in London. The Agency is responsible for the scientific evaluation of medicines developed by pharmaceutical companies for use in the European Union.

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    European Society for Medical Oncology
    News, published 4 months ago

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    The European Society for Medical Oncology (ESMO), the leading European professional organization representing medical oncologists.

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    Rare Cancers Europe
    News, published 4 months ago

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    Rare Cancers Europe (RCE) has been established as a partnership of cooperating organisations that work together to place the issue of rare cancers firmly on the European policy agenda, to identify and promote appropriate solutions and to exchange best practice.

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    Lymphoma Coalition
    News, published 4 months ago

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    We are a global network of worldwide not for profit lymphoma patient organisations with a Vision to free the world of lymphomas. We began in 2002 with 4 countries sharing best practices and now have a membership of 53 member organisations from 38 countries.

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    IWMF
    News, published 4 months ago

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    The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) was established in 1994 for the purpose of offering educational information and caring support to Waldenstrom’s macroglobulinemia (WM) patients. Since the year 2000 we have funded research that will lead to better treatment therapies and, we hope, eventually a cure.