Paraneoplastic Neurological syn. community

Paraneoplastic Neurological Syndromes (PNS) are a group of rare degenerative neurological disorders linked to an auto-immune response to cancer. PNSs include, but are not limited to: Paraneoplastic Cerebellar Degeneration (PCD), Lambert Eaton Syndrome (LES), Opsoclonus-myoclonus (OM), Stiff Person Syndrome (SPS) and Paraneoplastic Limbic Encephalitis (PLE).  

"The Great Pretender" by kathymattersrepp published about 16 hours ago

Living with PNP syndrome My story...how do I begin? My life has been turned upside down as you all know and it effects my family and friends also, so I am in this battle with many people. What effects me effects everyone that you have in your life. I do have concers for them also. They don't deserve this anymore than I do. I so appreciate everyone that helps me, my husband, son and daughte...

PCD by marilynb published 16 days ago

I was diagnosed with ovarian cancer in April 2006 and Paraneoplastic Cerebellar Degeneration in Feb. 2009. I walked with a cane until I fell and broke my arm. Used a walker until I fell and broke my back.

Now I am in a wheelchair and can't talk. I feel depressed and useless. I live in Northern -Ontario, Canada

I am so relieved to find this group. Until today, I thought I was the ...

Cerebellar degeneration - rapid onset of neurological symptoms by Rick published 18 days ago

This is the story of my mother who suffered from rapid onset of severe symptoms of paraneoplastic cerebellar degeneration related to cervical cancer. I'm always sad to introduce anyone to this group, but I'm grateful that it exists. My mother, Verne, had PCD almost 20 years ago. She was an extremely active woman, an avid swimmer, and an early "power walker", walking briskly ...

Living with PNS by NORD published 21 days ago

 


Lulu, a rare disease patient shares her story about living with Paraneoplastic Syndrome.

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