Multiple Myeloma community

Here's a selection of information from patients & professionals to better understand Multiple Myeloma.

Multiple Myeloma resources

Multiple Myeloma Frequently Asked Questions

Here are some of the most frequently asked questions and their answers:


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What causes Myeloma?

The exact cause or causes of myeloma are unknown. There are a number of suspected risks or trigger factors such as: exposure to certain types of industrial and agricultural chemicals (with benz...

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How common is Multiple Myeloma?

Multiple myeloma is the second most frequent form of malignant bone marrow disease and belongs to the non-Hodgkin group of lymphomas. It is a relatively rare form of cancer that accounts for roughl...

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What is Myeloma?

Multiple myeloma (also referred to as plasmacytoma or Morbus Kahler) is a malignant degeneration of the plasma cells. Reproduction of the cells in the bone marrow gets out of control.
* The pa...

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Multiple Myeloma Patient Groups

These are patient organisations that have experience and expertise in Multiple Myeloma. They are supporters of this website. Contact them for more information on their activities.

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  • European Myeloma Platform

    European Myeloma Platform (EMP) is a European umbrella organisation of myeloma patient support groups. In accordance with the spirit of its basic motive “Patients for Patients” it is the only pan-European myeloma patient organisation that is run by patients and their relatives for other patients, and it is politically and financially independent

    Contact European Myeloma Platform
  • Myeloma UK

    Registered as a charity in 1997, Myeloma UK is the leading UK cancer organisation dealing specifically with myeloma and its related disorders.

    Contact Myeloma UK
  • Myeloma Euronet

    Myeloma Euronet, a non-profit network organization of multiple myeloma patient groups, is a European initiative dedicated to raising the awareness of multiple myeloma, an increasingly common form of bone marrow cancer. Myeloma Euronet provides information on the diagnosis, treatment and care of persons living with multiple myeloma and supports its member organisations in the fulfilment of their missions. Myeloma Euronet also advocates, both independently and in collaboration with organisations with similar objectives, on behalf of those affected by multiple myeloma. Myeloma Euronet was launched at the 10th Congress of the European Hematology Association (EHA) in Stockholm on 3 June 2005.

    Contact Myeloma Euronet
  • Myeloma Patients Europe

    Contact Myeloma Patients Europe

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Multiple Myeloma Documents

Resources, documents and detailed informations on Multiple Myeloma. In this section you can download brochures, ask for printed documents or find useful links.

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Multiple Myeloma Articles

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Myeloma UK InfoLine

Call free on - 0800 980 3332 or 1800 937 773 from Ireland

The Myeloma UK Information Specialists are available Monday - Friday 9am - 5pm (closed weekends and most public holidays).

Facts ab...

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Multiple Myeloma Clinical Trials

A collection of useful links on clinical trials from various MM patient organisations and authorities...

Myeloma Euronet:

http://www.myeloma-euronet.org/en/multiple-myeloma/studies-in-multi...

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Orphanet: Multiple Myeloma

Multiple myeloma (MM) is a malignant tumor of plasma cells characterized by overproduction of abnormal plasma cells in the bone marrow and manifested by skeletal destruction, bone pain, and presenc...

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Multiple Myeloma Events

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  • February 2012

  • VII International Conference on Rare Diseases and Orphan Drugs (ICORD 2012)

    From 4 to 6 February 2012

    A global meeting on international cooperation and public health policies focusing on research, diagnosis, development of and access to treatment, and care for rare diseases, will be held in Tokyo. The VII ICORD Conference will offer a platform for the exchange of perspectives for medical and healthcare professionals, patients and patients’ groups, basic and clinical researchers, policy-makers, government officers and pharmaceutical, biotechnology and medical device industries.

    More info

  • Rare Cancers Conference: Improving the Methodology of Clinical Research

    On 10 February 2012

    The European Society for Medical Oncology and Rare Cancers Europe have joined forces to present the first Conference addressing the scientific and educational needs of relevant stakeholder groups concerning challenges and potential solutions in the field of clinical research on rare cancers. The conference will take place in Brussels, Belgium.

    More info

  • National Health Policy Conference

    On 13 February 2012

    The National Health Policy Conference (NHPC) provides clarity on the nation's critical health policy issues for the upcoming year and delivers a program with insider perspectives from health policy leaders to an audience that includes researchers, policy experts, and advocates. This event is taking place in Washington, D.C.

    More info

  • 5th International Rare Disease Day 2012

    From 29 February to 1 March 2012

    February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan “Rare but strong together”. Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand! United States participants can find more information here: http://rarediseaseday.us/

    More info

  • 1st International Congress on Research of Rare and Orphan Diseases

    From 29 February to 2 March 2012

    Gebert Rüf Stiftung and BLACKSWAN Foundation, both active in supporting research activities in the field of rare diseases, are preparing the first “International Congress on Research of Rare and Orphan Diseases – RE(ACT)” in 2012. It will take place at the Gehry Building on the Novartis Campus, Basel/Switzerland from February 29th to March 2nd 2012. A superb setting for stimulating learning, exchange and networking. The “RE(ACT) Congress 2012” will bring together world leaders and young scientists from both university and industry to present cutting edge research, to discuss results and to exchange ideas.

    More info

Multiple Myeloma community news

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    Pat Killingsworth: Multiple Myeloma Blog
    News, published 5 months ago

    show transcript


    Pat was diagnosed with Multiple Myeloma in April, 2007 at the age of fifty-one. There is currently no cure for this cancer of the plasma cells that are found in bone marrow. Pat experienced what is called a Complete Response (CR), or temporary remission after a year of intense steroid, radiation and oral chemotherapy. He remained in CR for more than two years. Unfortunately, Pat's multiple myeloma is slowly creeping back. But he has lots of treatment options and is doing fine so far. Pat's wife, Pattie, was first diagnosed with cancer in 1996. She is a cervical, uterine and ovarian cancer survivor. Despite a close call in 2009, Pattie remains cancer free today. Pattie now works with cancer patients at a Florida dialysis clinic. Pat is an author and freelance medical writer. He travels often, attending important medical conferences and speaking to cancer support groups. The Killingsworth's have dedicated their lives to helping other cancer patients and survivors learn to cope with their disease.

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    Riding the Wave - Multiple Myeloma
    News, published 5 months ago

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    A Caregiver's Inspirational Journey Through Cancer

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    The reconstruction of transcriptional networks reveals critical genes with implications for clinical outcome of multiple myeloma.
    News, published 5 months ago

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    Abstract

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    Gender disparities in the tumor genetics and clinical outcome of multiple myeloma.
    News, published 5 months ago

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    Abstract

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    Final touches to cabaret show (Myeloma UK benefit)
    News, published 5 months ago

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    She added: “It’s not one of the most common cancers so it’s vital that we raise as much money as we can for the charity to help them fund research into the disease and continue to provide support and advice.

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    Myeloma Beacon
    News, published 6 months ago

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    The Myeloma Beacon is an online service provided by Light Knowledge Resources, an independent Internet publishing company based in Princeton, New Jersey. The Beacon provides objective and unbiased news, information articles, and online forums related to multiple myeloma. Our mission is to be a key Internet resource and online community for multiple myeloma patients, their families, and others interested in multiple myeloma.