Moebius syndrome community

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Moebius syndrome community news

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    A Smile from the Heart
    News, published about 1 month ago

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    Ryan's mother has found herself getting involved with other moms around the country who have children with Moebius. She, like any parent, hopes this baby's childhood years will be spared the cruel comments that come with being different.

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    Sharp-eyed viewer diagnoses her grandson with rare nerve condition after watching documentary
    News, published about 1 month ago

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    The youngster was suffering from Moebius Syndrome, an extremely rare congenital neurological disorder characterised by facial paralysis and the inability to move the eyes from side to side. 

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    READER'S VIEWS: Moebius Syndrome Awareness Day 2012 was a success
    News, published about 1 month ago

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    I hope everyone had a great Moebius Syndrome Awareness Day. Mine was awesome. I gave out some information about Moebius Syndrome to the local hospital then I went to the clinic and gave them a Moebius Syndrome Calendar and talked to them for a while about Moebius Syndrome. Five people recognized me today from the news article that came out Monday (“Living with a rare disorder, Moebius Syndrome.”) 

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    Sask. mom spreading word about Moebius Syndrome
    News, published about 1 month ago

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    With faces that appear mask-like — a fixed stare, unblinking eyes, and an absent smile — people with Moebius Syndrome are often mistakenly taken for being unfriendly or rude.

    But Robbie Curtis knows her daughter Cassie is anything but, and it's part of the message she hopes to spread Tuesday during the second annual international awareness day for the extremely rare congenital neurological disorder.

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    Social Interaction Experiences of Adults with Moebius Syndrome: a Focus Group
    News, published about 1 month ago

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    Abstract only