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robpleticha | Colchicine, Patient Advocacy | 4 days ago | Originally written in English Article by Janine and new patient group forming in the US
Janine Jagger has published an article on the colchcine crisis in the U.S. on the Middle Eastern news service website OnIslam.net. The article reaches out to FMF patients in the Middle East, thanking them for their support during the U.S. colchicine crisis, and proposing more active patient support activities across regional boundaries and a contact point ([email protected]).
Find it here:
www.onislam.net/english/health-and-science... -
robpleticha | Managing attacks | 9 days ago | Originally written in English Study on FMF and Melatonin levels
Does it play a role in attacks? Scientific abstract here: www.ncbi.nlm.nih.gov/pubmed/21552416?dopt=...
Greetings from the EURORDIS Annual Membership Meeting in Amsterdam.
Rob
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toyre | Diagnosis, Finding a doctor, Colchicine, Managing attacks, Diet, Pregnancy, Research, School, Children | 15 days ago | Originally written in French L'AFFMF en anglais
Comment lire facilement la version anglaise du site de l’AFFMF
Marche à suivre : utiliser « Microsoft translator » fournit avec BING de Microsoft.
Détail de la manipulation.
1. Ouvrir le site AFFMF : www.affmf.org/ dans internet explorer de Microsoft
2. Touche droite de la souris : Traduire avec BING
3. Détection automatique ------------> Anglais
4. Le site entier passe en anglais
5. Bonne lecture à tous -
Hi,
In Turkey and Israel, Novartis is starting to test Canukinumab (Ilaris) with Colchicine resistant FMF patients.Canukinumab is already being used as a treatment for another auto-inflammatory rare disease, CAPS disorders.
See the trial information here:
clinicaltrials.gov/ct2/show/NCT01088880?te...and here for pediatric cases in Israel:
clinicaltrials.gov/ct2/show/NCT01148797?te...