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Conversations tagged finding-a-doctor

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toyre | Finding a doctor | 13 days ago | Originally written in French L'AFFMF en anglais

Comment lire facilement la version anglaise du site de l’AFFMF

Marche à suivre : utiliser « Microsoft translator » fournit avec BING de Microsoft.

Détail de la manipulation.
1. Ouvrir le site AFFMF : www.affmf.org/ dans internet explorer de Microsoft
2. Touche droite de la souris : Traduire avec BING
3. Détection automatique ------------> Anglais
4. Le site entier passe en anglais
5. Bonne lecture à tous
colleenjones | Finding a doctor | about 1 month ago | Originally written in English meditteranian fever

i would like to speak with anna if i could about fmf i will give you my email addy if you could contact me asap. my name is colleen jones both my daughter and i have med fever, i am 54 it didn't start with me till i was in my mid 40's my daughter nicole, is 25 and just had a bout, the worst yet which was a good 2 weeks with fevers of 105 every day going down to about 103. stayed for over 2 weeks and totally incapacitated, can you please contact us. she is on coultrachine,(misplelled) and has been for a couple of yrs.
my email is [email protected] i look forward to hearing from you, also if you know the name of any good docs please let us know, i don't care where they are.! thanks so much
colleen jones
One reply to the topic — see all replies
- Joelle about 1 month ago | Originally written in English
  
  Possible protracted febrile myalgia?
  
  Hi Colleen,
  
  I don't know enough about your daughter's symptoms but has her doctor considered the possibility of protracted febrile myalgia ?
  
  Protracted febrile myalgia is a rarer manifestation associated with FMF, it seems to occur more often in spring time when streptococcus infections are at their peak. It can involve a drawn out high fever, paralyzing muscle, pain, joint pain, abdominal pain, diarrhea, elevated heart rate, vasculitic rashes. Symptoms can last approx. 4 -6 weeks but can be shortened with corticosteroid treatment.
  
  See article links below.
  
  Best wishes,
  Joelle
  
  Here are some articles on protracted febrile myalgia in FMF patients.
  
  journals.lww.com/jclinrheum/Abstract/2006/...
  
  www.ncbi.nlm.nih.gov/pubmed/17949564
  
  onlinelibrary.wiley.com/doi/10.1111/j.1442...
  
  www.springerlink.com/content/g86037681x5l1...
  Case Report: Uncommon clinical pattern of FMF: protracted febrile myalgia syndrome
  Familial Mediterranean fever (FMF) is a genetic multisystem disorder of unknown etiology characterized by recurrent episodes of fever and pain due to acute inflammation of the peritoneum, synovia, or pleura. Up to 25% of patients with FMF report muscle pain. Myalgia may be a spontaneous pattern, exercise-induced pattern, or protracted febrile myalgia syndrome (PFMS). PFMS is characterized by severe paralyzing myalgia, high fever, abdominal pain, diarrhea, arthritis/arthralgia, and transient vasculitic rashes mimicking Henoch-Schonlein purpura. The episodes last for 4–6 weeks, except in those patients treated with corticosteroids. The PFMS may recur even under colchicine prophylaxis. We describe a 30-year-old pregnant Turkish woman with known FMF and under colchicine prophylaxis, with severe myalgia for 8 weeks, emphasizing the importance of a different clinical pattern of PFMS even in the absence of other symptoms.

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Familial Mediterranean Fever community news

Anti-TNF agents in familial Mediterranean fever: report of three cases and review of the literature
News, published 1 day ago
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Herein we present reports of three patients (all were positive for HLA B27) with typical spondylitis associated with FMF who were successfully managed with anti-TNF agents, along with a literature review.
Familial Mediterranean Fever and Hypercoagulability
News, published 4 days ago
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Familial Mediterranean fever (FMF) is an autosomal recessive hereditary disease which is characterized by recurrent attacks of fever and peritonitis, pleuritis, arthritis, or erysipelas-like skin disease. As such, FMF is a prototype of autoinflammatory diseases...
Efficacy and Safety of Canakinumab in Patients With Colchicine Resistant Familial Mediterranean Fever
News, published 12 days ago
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Establish the safety and efficacy of 3 months treatment with canakinumab in patients with colchicine resistant Familial Mediterranean Fever...
Coexistence of vasculitides with Familial Mediterranean Fever
News, published 12 days ago
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Abstract

Familial Mediterranean fever (FMF) is the most common autoinflammatory disease characterized by recurrent self-limited attacks of fever accompanied with peritonitis, pleuritis, or arthritis. FMF may coexist with various systemic..
Normal autonomic nervous system responses in uncomplicated familial Mediterranean fever: a comparative case-control study.
News, published 15 days ago
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There is a paucity of knowledge regarding the autonomic nervous system function in patients with familial Mediterranean fever (FMF). Therefore, our aim was to evaluate autonomic responses in patients with FMF using complementary tests...
Pharmacokinetics Study of Colchicine in Familial Mediterranean Fever (FMF) Patients
News, published about 1 month ago
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...The primary objective of this study is to evaluate and compare the steady-state pharmacokinetics of multiple oral doses of colchicine sprinkle capsules administered to pediatric and adult FMF patients...
Febbre Mediterranea Familiare, una malattia "antica"
News, published about 1 month ago
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La FMF fa parte di un gruppo di malattie rare, definite auto infiammatorie. Ne soffrono circa un migliaio di persone in Italia, concentrate in particolare nelle regioni del Sud. Ma il dato è sottostimato, vista la difficoltà di una diagnosi immediata.
Vascular comorbidities in familial Mediterranean fever
News, published about 1 month ago
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Abstract
Familial Mediterranean fever (FMF) is a common hereditary autoinflammatory disorder characterized by recurrent febrile attacks and polyserositis. The MEditerranean FeVer (MEFV) gene missense mutations altering the structure...
Clinical and Experimental Rheumatology - Behçet's disease and other autoinflammatory conditions
News, published 2 months ago
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Links to free, full text articles on FMF. With articles including:

Association of familial mediterranean fever and celiac disease in a 14-year-old girl with recurrent arthritis

Relapsing polychondritis in a patient with familial Mediterranean fever and amyloidosis

Familial Mediterranean fever. A bird`s eye review of the recent literature

...any many more!

Articles from 2006 here: http://www.clinexprheumatol.org/a.asp?IDArchivio=71&Free=1
Shar-Pei dogs and FMF
News, published 2 months ago
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Though more research is needed, the HA pathway may represent a new trigger for the 60% of repetitive human fever illnesses without a known cause, such as Familial Mediterranean Fever. The Broad/Uppsala team is now following up on this potential link in human patients.