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colleenjones | Finding a doctor | about 1 month ago | Originally written in English meditteranian fever
i would like to speak with anna if i could about fmf i will give you my email addy if you could contact me asap. my name is colleen jones both my daughter and i have med fever, i am 54 it didn't start with me till i was in my mid 40's my daughter nicole, is 25 and just had a bout, the worst yet which was a good 2 weeks with fevers of 105 every day going down to about 103. stayed for over 2 weeks and totally incapacitated, can you please contact us. she is on coultrachine,(misplelled) and has been for a couple of yrs.
my email is [email protected] i look forward to hearing from you, also if you know the name of any good docs please let us know, i don't care where they are.! thanks so much
Possible protracted febrile myalgia?
I don't know enough about your daughter's symptoms but has her doctor considered the possibility of protracted febrile myalgia ?
Protracted febrile myalgia is a rarer manifestation associated with FMF, it seems to occur more often in spring time when streptococcus infections are at their peak. It can involve a drawn out high fever, paralyzing muscle, pain, joint pain, abdominal pain, diarrhea, elevated heart rate, vasculitic rashes. Symptoms can last approx. 4 -6 weeks but can be shortened with corticosteroid treatment.
See article links below.
Here are some articles on protracted febrile myalgia in FMF patients.
Case Report: Uncommon clinical pattern of FMF: protracted febrile myalgia syndrome
Familial Mediterranean fever (FMF) is a genetic multisystem disorder of unknown etiology characterized by recurrent episodes of fever and pain due to acute inflammation of the peritoneum, synovia, or pleura. Up to 25% of patients with FMF report muscle pain. Myalgia may be a spontaneous pattern, exercise-induced pattern, or protracted febrile myalgia syndrome (PFMS). PFMS is characterized by severe paralyzing myalgia, high fever, abdominal pain, diarrhea, arthritis/arthralgia, and transient vasculitic rashes mimicking Henoch-Schonlein purpura. The episodes last for 4–6 weeks, except in those patients treated with corticosteroids. The PFMS may recur even under colchicine prophylaxis. We describe a 30-year-old pregnant Turkish woman with known FMF and under colchicine prophylaxis, with severe myalgia for 8 weeks, emphasizing the importance of a different clinical pattern of PFMS even in the absence of other symptoms.