Familial Mediterranean Fever community

Familial Mediterranean Fever (FMF) is a hereditary autoinflammatory disorder.

Fortunately it has been a long journey. by jazito published 23 days ago

Living with FMF for 45 years... Christmas Eve 1968. I was doubled over with severe pain in my abdomen and was running a fever of 102 degrees. No amount of blankets could take away the chills and shivering as I lay in bed. My visit to the emergency room ended with a diagnosis of semi-acute appendicitis. This was followed over the next year with several more attacks some of which caused trips ...

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Donna's experience with FMF by Donna published about 1 month ago

Started at the early age of 2. I was 2 when I started getting attacks. Just like other members, was sick with high fevers, vomiting excrutiating pain on the 2nd day and total weakness the 3rd. day. At the same time my 2 sisters were also suffering the same symptoms. My doctor finally (after having appendix removed and a million tests and hospitals)said that I will out grow it.
But of course ...

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Finally Diagnosed by grover722 published 3 months ago

I was finally diagnosed with FMF on November 2010, at the age of 38. Since I was about 2 years old, I have had health issues. By the time I was about 14, I did not seem to be as sick, so doctors just thought whatever I had went away.

Over the years I always had severe health issues but I guess I just tried to ignore them until sometime in 2005. I started getting so sick that I couldn...

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Recently diagnosed with FMF by Tata published 7 months ago

Hi All,
This site is great and provides a lot of vey important information for FMF patients.
Here is my story. My family is of Armenian descent and now leaves in US. My 10 year old son had recurrent episodes of peritonitis and fever since he was 5, but despite multiple doctor and ER visits nobody could give us a clear answer on his condition. A few months ago his knee got very inflamed after...

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Patient groups

  • AIFP

  • Stichting FMF-Community Nederland

  • AFFMF

  • FMF Montreal

More information about these groups

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Familial Mediterranean Fever Recent Activity

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    Evolution of AFFMF
    topic, published 4 days ago

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    In response to numerous requests, the AFFMF (French Association of Familial Mediterranean Fever) has developed on its website pages in English,
    "The AFFMF in English": http://affmf.jimdo.com/accueil/the-affmf-in-english/
    "US News": http://affmf.jimdo.com/accueil/the-affmf-in-english/us-news/
    ...

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    Pregnancy with FMF
    topic, published 7 days ago

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    Hi my name is iris and I was born in Israel,I live in NY for the past 10 years and I have fmf since I born due to the family history. I am currently 5 months pregnant with my first baby. All the years here in America my fmf was stable and control since I got pregnant my fmf condition become worse...

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    A doctor in Montreal
    topic, published 13 days ago

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    I need your help, I am planning to immigrate to Montreal this summer and I have two children (24 and 18) diagnosed with FMF. I need an address of doctor or clinic or hospital that my children can follow regularly with them specially when my doctor, here in Cairo, told me that my son might need to...

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    Colchicine Access in the USA
    topic, published 22 days ago

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    Are you a United States FMF patient having trouble with accessing a suitable brand of Colchicine? We would like to hear from you, please message me here or at [email protected]

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    Finding a doctor
    topic, published 23 days ago

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    What specialists are the best for FMF? I have an internist and have also gone to a rumatologist, neither has any idea what to do or how to help.

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    Source for colchicine
    topic, published 26 days ago

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    I started taking Colcrys about Nov. 2010. For the first 2 months I thought it was a miracle drug---then it was all downhill from there. I discontinued taking it 1 week ago. Although it controlled pain to a degree, the side effects are bad. It is very dehydrating---I lost a lot of weight---just s...

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    Colchicine and Children
    topic, published about 1 month ago

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    Hi. I am the mother of 2 children with FMF. Our son was diagnosed at 7 yrs old, and prescribed Colchicine along with Phenobarbitol (to control the side effects of Colchicine). The doctor started him on a dosage of .6 mg and to increase at intervals. We noticed that when he began the medicatio...

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    Maladie périodique ?
    topic, published about 1 month ago

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    Hello, my nine-year-old little sister was diagnosed FMF approximately four years ago. At first she suffered from severe abdominal cramps followed by fever and vomiting, and this on a weekly basis. When the pediatrician diagnosed the disease he prescribed (colchicine) that reduced her pain and he...

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    AFFMF NEWS
    topic, published about 1 month ago

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    The AFFMF (French Association of Familial Mediterranean Fever) has a page on its site aimed at English-speaking countries.
    http://affmf.jimdo.com/accueil/the-affmf-in-english/
    AFFMF - 20 rue de Madrid 75008 Paris
    phone: 01 48 74 41 71
    email: [email protected]

    L’AFFMF (Association Française d...

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    Donna,
    topic, published about 1 month ago

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    MANY FMF sufferers are having problems with colcrys. Please join our support group at:
    FMF Support mailing list:
    [email protected]

    Nancy