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Welcome & thanks for coming to the EDS community!View: Translations (EN) Original language
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AllieFreitas | Member intro. | published 6 days ago | Originally written in English Welcome & thanks for coming to the EDS community!
My name is Allie and I work for NORD- The National Organization for Rare Disorders. I am Rob's US counterpart and work on managing these communities.
If you have any questions please do not hesitate to contact me at [email protected]
Please share your story in the What? section. You can do this through your profile and the "Share your story" tab.