Cystinosis community

Cystinosis is a lysosomal storage disease characterized by the abnormal accumulation of the amino acid cystine.

Register For The UK Conference

Written by Cystinosis Foundation UK, published about 1 month ago.

The Cystinosis Foundation UK is organising a one day conference on Saturday 24th September at the Manchester Conference Centre and you can now register by printing and sending the Registration Form.

The conference is being funded by the Foundation, so is free to attend. It is open to all those who are touched by Cystinosis – whether you have Cystinosis, have a family member or friend with Cystinosis, are a researcher, medical professional or in some way connected with the condition.

The conference is due to start at 1000 and expected to last until 1700. It is hoped that many will consider staying after the conference for some social time together. Accommodation can be arranged at the Manchester Conference Centre, or one of the many other hotels nearby. Accommodation is your responsibility to arrange, although we will try to advise where possible.

If you wish to attend, please download our Registration Form and follow the instructions on the form that explain how to complete and send back to the Cystinosis Foundation UK in order to confirm your attendance.

We all hope to see you there!

Written by Cystinosis Foundation UK, published about 1 month ago.

Patient groups

  • Cystinosis Support Australia

  • Cystinosis Foun. France

  • Cystinosis Support Germany

  • Cystinosis Foun. Ireland

  • Mexican Cystinosis Association

  • Cystinosis Group Netherlands

  • Cystinosis Foun. UK

  • Cystinosis Foun. USA

  • Cystinosis Research Network

  • South Africa Support Group

  • Cystinosis Research Foundation

  • Cystinosis Foundation Venezuela

  • Italian Cystinosis Assoc.

  • Brazil Cystinosis Support

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