CDG community

Here's a selection of information from patients & professionals to better understand CDG.

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CDG Family Network

Website: http://www.cdgfamilynetwork...

Founded in 1996, The CDG Family Network is a non-profit 501 (c)(3) organization founded by parents seeking information and support for a group of disorders known as CDG (Congenital Disorders of Glycosylation). We exchange information with families and physicians, locate new families and raise awareness among the medical community. Our organization fosters communication among families. We accomplish this task through a variety of ways that include our website, family conferences, parent directory, and e-mail listserv.