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CDGportugal | published about 1 month ago | Originally written in English Directive on the application of patients' rights in cross-border healthcare
The Network's mission
The Network will bring together the national authorities responsible for eHealth on a voluntary basis to work on common orientations for eHealth. The aim is to ensure EU wide interoperability of electronic health systems and wider use of eHealth. The eHealth Network is expected to translate the results of numerous research projects and pilot projects into real-life accessible services for European citizens.
CDGportugal | published about 1 month ago | Originally written in English International Rare Disease Research Consortium (IRDiRC)
IRDiRC will team up researchers and funding agencies in order to achieve two main objectives by the year 2020, namely to deliver 200 new therapies for rare diseases and diagnostic tools for most rare diseases.
Please we are very much looking for to have more stories and / or videos from CDG families. Tell us if you would like to contribute. You can add your story to the website by going to your Profile --->Tell My Story.
You can suggest a video here, or email [email protected] to have your video added.
CDGportugal | Awareness kit | published about 1 month ago | Originally written in English Tools to inform and empower CDG families:
There are several NEW links available :
to download the CDG Fairy tale: bit.ly/zIVD0l
an article about the recent mouse model for CDG: bit.ly/Ak6Tek
and an interview in the radio done to the Portuguese organization: bit.ly/vZd7Rh