CDG community

Congenital Disorders of Glycosylation (CDG), formerly called carbohydrate-deficient glycoprotein syndrome, are a group of very rare inherited metabolic disorders that affect a process called glycosylation.

Mason's CDG Brings Gene Discovery by KPBS published 9 days ago


News video showing a young man named Mason, who lives with CDG. Mason and his family traveled from the east coast to San Diego to thank the researcher, Hudson Freeze, who discovered the cause of...

Eline's Story by Noëlle published 24 days ago


Experience of living with CDG in the Netherlands. 

Logan by Juli published about 1 month ago

The story of Logan, a CDG patient.

CDG 1a in Spain by Julia published about 1 month ago


San SIlvestre Race in Funes on December 31, 2011.
Ivan who has CDG 1a participates in the race with his classmates.

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