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rdc-team | Muckle-Wells, NOMID, FCAS | about 1 month ago | written in English Call for patient testimonies / stories
There are still many patients living with CAPS in the world who have not yet been diagnosed. We are calling on patients who wish to share their story of diagnosis and living with CAPS to come forward and share your story. It can be in complete anonymity but it will go a long way towards helping others come forward and discuss with their doctor and maybe realise that what they've been living with all these years in fact can be diagnosed and treated.
If you have lived with Muckle-Wells, FCAS or NOMID and if you'd like to share your story similar to what some other patients have done e.g. bit.ly/paulmucklewells then please message us via the rdc-team profile page (just click on the square logo) or email us at [email protected]One reply to the topic