Behçet’s Syndrome community

Behçet’s Syndrome is a chronic, rare condition caused by disturbances in the body’s immune system.

Two Weeks Of Hell by LeaMarie00 published 7 days ago

How I Met Behcet's...    I arose in the morning with burning, puffy eyes. Hoping it wasn't pink eye (natural assumption given I have an 8 year old) and that it would go away on it's own, I went about my day. That night when I brushed my teeth, my gums were painful and had begun to bleed. Within ten minutes of brushing my teeth, I noticed the first painful ulcer just on the inside...

Read more

Behcet’s syndrome is mine. by sslaird published 15 days ago

A long struggle with diagnoses, impact on life, and what lies ahead. I was diagnosed with Behcet’s syndrome in Spring of 2011. After “Googling” posterior uveitis and memingitis in Pubmed, the list was full of Behcet’s. I read the articles and contacted my eye doctor. He wrote back, “You would have to have ulcers to have it" and I said, "I have them all the time". Finally, after 1...

Read more

My Journey to Diagnosis by Colleen_Wendtland published 16 days ago

I'm not positive how long I've had Behcet's Disease before I was finally diagnosed in 2003. I still find it all confusing, I'm not sure the Medical Community really understands the disease process. They don't all agree that the symptoms are related to Bechet's. I believe the first signs of Behcet’s Disease I had were probably gastrointestinal along with mouth ulc...

Read more

My BD Journey by camille published about 1 month ago

This is a quick overview of my journey toward a diagnosis. There is so much more to a person's BD story than what can be comfortably contained in a readable format. I don't want to be boring by rambling endlessly - just informative. If anyone has any questions, or would like more information/clarification about anything I say in the "story" below - please email me. I wou...

Read more

Patient groups

  • SIMBA Italy

  • Ass. Française de Behçet

  • As. Española de Behçet

  • UK Behçet’s Syndrome Society

  • American Behcet's Disease Assoc.

More information about these groups

Filters

Behçet’s Syndrome Recent Activity

  • -

    Stress Level Increased
    topic, published 7 days ago

    show transcript

    Behcet's is being overlooked and misdiagnosed.

    Two months prior to my two week flare of aphtous ulcers, uveitis, and every other symptom imaginable; I was seen in the emergency room for abdominal pain and swelling. They prescribed me two different medications, both of which were used to treat ...

  • -

    Help! Bechet's In Alabama
    topic, published 7 days ago

    show transcript

    I have had this horrible disease for about 4 years now. I have seen so many doctors and specialist.I meet a rheumatologist here in Dothan Al that diagnosed me.He changes my meds up all the time and I now he is doing the best he can with what info he has.I just wish there was a doctor close to me ...

  • -

    Behcet's Centres of Excellence announced in the UK
    topic, published 20 days ago

    show transcript

    Congratulations to our friends at the UK Behcet's Syndrome Society for their achievement of getting 3 new centres for Behcet's patients named in the UK.

    Read the press release here: http://bit.ly/xCQimQ

  • -

    Press release: UK Behçets Syndrome Centres of Excellence announced
    document, published 20 days ago

    show transcript

  • -

    Mouth ulcers
    topic, published 21 days ago

    show transcript

    I had ulcerations in my mouth that felt like they were going through my cheek. They were huge and deep and very painful. Non of the medications helped except prednisone and I hated taking it all of the time. Quite by accident, I found that Spicy V-8 stopped the pain. When you first put it in your...

  • -

    Behcets doctors???
    topic, published 23 days ago

    show transcript

    Is anyone here from the greater Vancouver and Fraser Valley area in BC Canada.I need a doctor who can do something for me...my family doctor has become very unwilling and unknowledgeable in helping me find a doctor who has dealt with Behcets and has current expertise.Is there anybody who knows a...

  • -

    Symptoms of Behçet’s Syndrome in a representative group of adults in the UK.
    document, published 23 days ago

    show transcript

    Introduction
    The report provides epidemiological data that reflects the needs of adults with Behçet’s Syndrome living in the UK. The findings will help (i) commission and manage treatment demands based on sound epidemiological data; (ii) develop health care strategies targeting relevant symptoms...

  • -

    New Insights in the Clinical Understanding of Behçet’s Disease
    document, published 23 days ago

    show transcript

    Behçet’s disease is a chronic relapsing multisystemic inflammatory disorder characterized by four major symptoms (oral aphthous ulcers, genital ulcers, skin lesions, and ocular lesions) and occasionally by five minor symptoms (arthritis, gastrointestinal ulcers, epididymitis, vascular lesions, an...

  • -

    bonjour
    topic, published 23 days ago

    show transcript

    Bonjour les amis, je viens de créer un blog que je vais essayer de mettre à jour régulièrement pour que le benifice soit général. voici l'adresse:

    [email protected]

    Bon courage à toutes et à tous.

  • -

    anybody with Behcet's syndrome from Cyprus???
    topic, published about 1 month ago

    show transcript

    My name is Clery. I come from Cyprus and I was diagnosed with Behcet's syndrom 7 years ago. I have never met or talked with any other patient with Behcet's syndrome. I will be "glad" to meet or talk to somebody with the same problems as me!
    I was suffering without knowing what my problem was.
    ...