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Interested in a USA conference for aHUS families ?

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  LindaBurke | Meetings | 3 months ago | Originally written in English Interested in a USA conference for aHUS families ?

  We welcome the proposed opportunity for aHUS patients, parents, and aHUS physicians/researchers to meet at the University of Iowa. The University of Iowa has a highly accredited lab with expertise in aHUS genetic screening, and they successfully pioneered the first American aHUS renal transplant with planned Soliris therapy. The following is a message from Bill and Cheryl Biermann, founders of The Foundation for Children with Atypical HUS.

  Linda Burke, www.atypicalhus.org

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  Hello All,

  I hope all is going well with you. I just wanted to take a quick show of hands, and determine who might be interested in attending an "aHUS Parent Conference at the University of Iowa in the fall of this year.

  As you may know, the University of Iowa has been the gracious host of two aHUS family conferences to date, the last conference was held in October of 2009. Our goal was to hold a conference every two years . I know there has been a lot of developments in the past two years, so I am hopeful that interest will be high. We can also address business for the Foundation for Children with Atypical HUS.

  Please respond to [email protected] if you are interested.

  Thanks,
  Bill & Cheryl Biermann

  Directors

  P1 Campbell Plaza | Suite 2B | St. Louis, MO 63139-1780
  Phone: 314-596-6738

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