Rare Disease Communities helps patients to understand their condition, connect with other patients and provides tools for living with their diseases

Understand. Daily life with a rare disease.

Meet! Connect with other patients.

Learn. Learn more and find resources.


Visit a community

Custom Rare Disease Search Engine

No online community for your area of interest yet?
Use this search engine to search the following websites: eurordis.org, orpha.net, rarediseases.org and rarediseases.info.nih.gov. More info about these sites. You can also contact us to inform us of your interest in setting up future online patient communities.

Announcements

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Child Neurology Society Annual Meeting

Event, from 31 October to 3 November 2012

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41st Annual Meeting
Oct 31 - Nov 3, 2012
Huntington Beach Resort
Huntington Beach, California

More info