Rare Disease Communities helps patients to understand their condition, connect with other patients and provides tools for living with their diseases
Understand. Daily life with a rare disease.
- - Browse patient testimonies,
- - Share images & photos,
- - Find explanations,
- - Contact patient associations
Meet! Connect with other patients.
- - Start conversations,
- - Interact with others,
- - Ask questions,
- - Meet other patients or families
Learn. Learn more and find resources.
- - Contact expert patients,
- - Become informed,
- - Download,
- - Find information adapted to your needs
Visit a community
- Alkaptonuria (AKU)
- Alternating Hemiplegia
- Atypical Hemolytic Uremic Syn.
- Behçet’s Syndrome
- Dravet syndrome
- Ehlers-Danlos syndrome
- Epidermolysis Bullosa
- Familial Mediterranean Fever
- Glut1 DS
- Hereditary Spastic Paraplegia
- Pulmonary hypertension
- Waldenstrom macroglobulinemia
- Multiple Myeloma
- Moebius syndrome
- Paraneoplastic Neurological syn.
- Von Hippel-Lindau
Custom Rare Disease Search Engine
No online community for your area of interest yet?
Use this search engine to search the following websites: eurordis.org, orpha.net, rarediseases.org and rarediseases.info.nih.gov. More info about these sites. You can also contact us to inform us of your interest in setting up future online patient communities.
Event, from 31 October to 3 November 2012
Viagra professional i Norge - Dr. Asbjørn Følling
Profesjonell Viagra, den nye generasjonen medisiner for å behandle erektil dysfunksjon
41st Annual Meeting
Oct 31 - Nov 3, 2012
Huntington Beach Resort
Huntington Beach, California